C has had quite a busy month. Sometimes it feels like we need a translator. We recently went to the Rehab clinic and they diagnosed C with Cerebral Palsy (CP). Which is something we have been asking for because it really opens the door up regarding insurance coverage and services. They also prescribed DAFOs which are braces for his ankles. DAFO means Dynamic Ankle Foot Orthoses, and you can say it like dayfo or dafo. And finally, we saw GI, Gastroenterology. Right now, we are not expecting to get any sort of tube (feeding tube), which is wonderful, and we will continue Operation Fatten C Up, or OFCU! He needs to gain weight. We continue to work very hard on getting him to eat and drink all he should daily.
Wow!! Thank you so much for updating. Nothing like this is easy or altogether pleasant, no question. I cannot wait to see the Big C again soon I hope. Please give Jeffrey Michael a hug for me & know I’m thinking good thoughts for you all. Chamberlain is one lucky lil lad w/ the parents he has. 🙂 Will be round Wbg more often soon. Jake starts varsity basketball really quickly. Will tell y’all which days I’ll be round for his games.—Take Care, Chris
LET IT FLOW, LET YOURSELF GO…SLOW & LOW, THAT IS THE TEMPO!!
Chamberlain, what a precious little man you are! With all of the bumps in the road you encounter, you remain the sweetest, happy little guy that we love so much! Your Mommy and Daddy are the head cheerleaders for all of us on Team Chamberlain!
Go C Go!
Great news about no feeding tube! I’m glad to hear that getting the CP diagnosis will help C get more services. We just love that little guy so much! Hope to see you all soon. Ashley says she can’t wait to give C some kisses on his cute little face!
I’m rooting for operation OFCU! That’s so cute Jenna!
Thanks, we have to come up with our own acronyms.